syrinx

Thought I would post this in our site, as that is where it really belongs. I'm kinda fed up with "migraine trigger lists" and the whole focus that is taken away from the real issues.

Hi wanted to drop by your site as I read your list on triggers. Wow - that is one long list.
Your list of triggers is impressive - but I want to propose the idea that the triggers are really beside the point. I have come full circle on this issue and for people who get maybe 4 migraines in a year.. maybe the trigger aspect is worth it for them to contemplate. But for the hard cases like me that are looking at 4 good days in a month, the rest of it in pain - we are talking about a disease that no longer has anything to do with triggers or weather or diet.
That plus the "blame the victim" aspect of this type of approach is actually starting to irritate me.

Nothing I eat is reducing my life to a huge struggle. The weather plays a role, but what weather? winter, rain - hot, cold? well the answer is yes all of those.
Too much sleep, not enough sleep. There actually is no pattern beyond just living, breathing, as the culprit.
Happy or miserable - they are there or not.
I think as long as we continue to look in same place - over and over, we miss the causes. It's a disease. It has a life of it's own.
We need to stop categorizing migraine as classic or common. Instead, high frequency of attacks needs a name. That needs to be identified as another form - the "extreme" migraine. I feel for anyone who gets them - but really when they say so many millions of people get them they are talking about the people who had five bad headaches that year. They are not talking about people like me, because if they were, our world would be a very different place. Oh and it would be treated by now.
So please don't waste my time with your list of triggers. That is just a slight of hand routine to distract us from the fact that you just don't know.